Stories and Articles
New Chronic UTI Worksheet
The Chronic UTI Worksheet is a new, easy to use tool developed for people navigating the challenges of chronic UTI. By providing a structured way to document symptoms, track pain and monitor treatment, the worksheet enhances communication between patients and...
Victorian Inquiry Into Women’s Pain
Following a landmark survey dedicated to women's health, in January 2024 the Victorian state government announced it was conducting an inquiry into women's pain. The Inquiry will report on the lived experiences of Victorian girls and women and is expected to...
Chronic UTI recognition in UK will help Australian campaign
In 2023 England’s National Health Service (NHS) responded to public pressure by finally recognising chronic urinary tract infection (UTI) as a distinct condition requiring specialist diagnosis and treatment. The development could pave the way for patient advocates...
Chronic UTI Survey Report – Hearing Patient Voices
The Hearing Patient Voices project surveyed 410 people from around the world with chronic urinary tract infection (UTI). The online survey measured the impact chronic UTI has on quality-of-life and focused on symptoms, various life domains, emotional wellbeing,...
Danielle’s Chronic UTI Story
A common urinary tract infection left Danielle with chronic symptoms that doctors misdiagnosed as interstitial cystitis (IC)—an incurable, yet questionable, urinary syndrome that is now under heavy scrutiny. Once she found a doctor who understood her condition,...
Carly’s Chronic UTI Story
(Carly's story was updated in October 2024.) Carly was 21 when she had her first UTI. She was treated with antibiotics and a week later her symptoms were back. This pattern continued. Her doctor believed each episode was a new infection but she wasn't so sure. ...
Julie C’s Chronic UTI Story
After frequent international travel for work, Julie developed a series of complex symptoms that were badly impacting her health. Her symptoms were put down to an auto-immune condition that she had to live with. Six years on she developed further symptoms – this...
Chronic UTI Support for Australia & New Zealand
Online information and support groups can be great places to link with others who are in a similar situation. This can help reduce feelings of isolation often experienced by people suffering silently with persistent lower urinary tract symptoms (LUTS). Online...
Vale Professor James Malone-Lee
Thousands of hearts around the world broke at the news of Professor James Malone-Lee’s passing in the early hours of Saturday morning after a short illness forced his retirement from researching urinary tract infections (UTI) and treating patients. In a surprise...